Friday, August 5, 2016

August Meeting 2016

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CHECK OUT THE PUMPERS WEBSITE FOR ADDITIONAL INFORMATION!  sdinsulinpumpers.blogspot.com
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San Diego Insulin Pumpers

Mutual Support - General Discussion - Expert Speakers
All pumpers, companions, and friends welcome!

Don't Miss the AUGUST meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: Managing Diabetes When Exercising
MEETING TIME:  Monday, August 8th, 7:00-8:30pm
LOCATION:  Sharp Medical Facility
8695 Spectrum Centre Blvd, Room 186

THIS MONTH:  Exercise is important to maintaining a healthy lifestyle. But, it is also an added and sometimes confusing variable to diabetes control. Matthew Schoenherr, Sharp Hospital Exercise Physiologist will review the effects of exercise related to insulin users and add simple decision making tools to successfully manage diabetes and exercise.

LAST MONTH: We had a lively discussion about insurance plans and coverage.  When anything changes with your insurance (company or plan, supplier of diabetes products) find out what is covered before you order and end up having to pay for items you thought were covered or embroiled in a frustrating battle with your insurance company.

^^^^^PLEASE READ PAST THE FIRST PAGE TO LEARN ABOUT FUTURE PROGRAMS. Details of studies and other diabetes information of interest will now be on our website ^^^^^sdinsulinpumpers.blogspot.com).^^^^^

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.
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ANNOUNCEMENTS

*****Dexcom G5 App Study
Who: Males & Females, 16 to 65 diagnosed with Diabetes
When: Thursday, August 11th and Friday, August 12th
Length: 1 hour, Pay: $100
Where: Plaza Research San Diego (UTC area)

If interested in the Dexcom G5 App study, please enter the link below in your browser and fill out the survey. Not all will qualify.  Those that qualify will be contacted and fully screened and scheduled for the paid focus group.  If you have any questions, please call their office (858) 200-3000.

http://sdinsulinpumpers.us3.list-manage1.com/track/click?u=10bf3478ca168b1633b80832c&id=664618339d&e=c9f09e870a

*****UCSD Study
The study is evaluating the effects of sotagliflozin, a dual SGLT-1 and SGLT-2 inhibitor, in T1 diabetics. The drug is designed to help smooth out high glucose values and may also assist in losing weight.
We are looking for:
*Type 1 diabetic, diagnosed at least 1 year ago
*18 or over – no limit
*No diabetic medications other than insulin
*A1c 7.0 – 11.0 %
*Willing & able to use provided glucose meter with cloud link
This study is closing soon. Subjects must screen by SEPT 2.

Study Commitment:
The period of participation is approximately 7 months. In-person clinic visits are as follows:
*Screening
*1-2 weeks later – Dispense drug
*2 weeks later – Check in
*4 weeks later – follow up
*4 weeks later – follow up
*8 weeks later – follow up
*8 weeks later – follow up
Compensation is $100 for screening, $75 for each visit thereafter.

Contact:  Lorraine Daly MS, JD, CCRC
Clinical Research Coordinator
UCSD Clinical & Translational Research Institute
858-822-3108
ldaly@ucsd.edu

*****If you have diabetes books that you may like to give away, will you PLEASE bring them to the Pumper's meeting in August or September.  Long-time pumper Nathan Feinstein will give them away FREE to Native Americans at the Barona and Sycuan Powwows On Sept 2-4 and 16-18, respectively.
     As you may be aware, Native Americans have twice the rate of diabetes of other Americans and half the money, except the few who are associated with casinos. These events will include people from all over  America, who will be competing for cash prices by performing beautiful traditional Indian dances.
   This will be Feinstein's 4th and 5th appearances at these Powwows. Feinstein is volunteering with the Heartland Coalition, HeatlandCln.org, a 501c3 charity. If you would like a tax receipt, please so note and provide your email address, etc..
   Last year every book offered was scooped-up gratefully.
If you would likie to participate at the events, or mail-in your books, please contact Nathan directly:
      StopDiabetes2@Gmail.com; 858/232-5725 (text preferred); or 5951 Kantor St. #204, San Diego, 92122.

Only the announcement of new items of interest will be located here. Detailed information can be found on our website.
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Mailing List

We are constantly updating our newsletter mailing list.  If you wish to be removed from this list, please notify us at sdinsulinpumpers@gmail.com.  If anyone you know would like to receive the newsletter, please ask them to notify us as well.

San Diego Insulin Pumpers will never sell, rent, or share your email address!  Please add sdinsulinpumpers@gmail.com to your safe senders list to ensure you receive further communication.
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2016 Pump Club Programs

Sept 12      Jo Ann Shartel CDE, RN, CPT
Oct 8        Dr. Steve Edelman and Dr. Jeremy Pettus
Nov 14       John Walsh, PA,CDE Current research, news from the ADA conference
Dec 12       HOLIDAY DINNER

Other Diabetes Events

8/14    7:00-9:00  The North County Diabetes Support Group meets at Tri City Medical Center, 4002 Vista Way, Oceanside, CA 92056 on the 2nd Thursday of the month. (Use the main entrance, take the elevator down to the lower level, then follow the signs!)  Call 760-576-5158 or email NorthCountyDiabetesGroup@gmail.com for more information.

9/6      6-7:30  Scripps Whittier Institute Type 1 Diabetes Connect.  Email Ohrmund.Cheryl@scrippshealth.org for more information.

10/1     10am - 4pm  TCOYD Conference

11/1     6-7:30  Scripps Whittier Institute Type 1 Diabetes Connect.   mail Ohrmund.Cheryl@scrippshealth.org for more information.

11/16    6:30-8:30 TCOYD Miniseries - Cooking That Caters to Your Health
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*|This list provides information about SD Insulin Pumpers programs and diabetes-related information and events.|*

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San Diego, CA 92108

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Monday, July 11, 2016

July Meeting 2016

GREAT NEWS:  THE  SD Insulin Pumpers WEBSITE IS ONLINE!!!  FOR NOW, TO ACCESS THE SITE, YOU MUST TYPE OUR FULL SITE URL (sdinsulinpumpers.blogspot.com) IN THE ADDRESS BOX AT THE TOP OF THE SCREEN.  WE SUGGEST YOU BOOKMARK THE SITE TO MAKE IT EASIER TO ACCESS.

Don't Miss the JULY meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: OPEN DISCUSSION
MEETING TIME:  Monday, July 11th, 7:00-8:30pm
LOCATION:  Sharp Medical Facility
8695 Spectrum Centre Blvd, Room 186

THIS MONTH: Open Discussion.  We'll discuss any issues or questions you have.

LAST MONTH: We had a lively discussion on Pumps and CGM devices.

^^^^^PLEASE READ PAST THE FIRST PAGE TO LEARN ABOUT FUTURE PROGRAMS. Details of studies and other diabetes information of interest will now be on our website ^^^^^sdinsulinpumpers.blogspot.com).^^^^^

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.
____________________________________________________________
ANNOUNCEMENTS

**Dr. Pettus is in need of 2 more candidates for the REMD Glucagon Receptor Study listed on the website.  Contact Lorraine Daly, MS, JD, CCRC Clinical Research Coordinator UCSD Clinical & Translational Research Institute
9452 Medical Center Drive, 2W C11
La Jolla, CA 92037
858-822-3108 (ph)
310-613-9730 (cell)

**AMCR has studies starting soon.  They have a study starting 7/5/16 that needs 5-10 Pumpers using Medtronic pumps.  There is a meter study starting the week of July 11th that is open to Type 1’s and 2’s ages 18 to 80. Contact Cheryl at AMCR 760-466-1520.

Only the announcement of new items of interest will be located here. Detailed information can be found on our website.
___________________________________________________________
Mailing List

We are constantly updating our newsletter mailing list.  If you wish to be removed from this list, please notify us at sdinsulinpumpers@gmail.com.  If anyone you know would like to receive the newsletter, please ask them to notify us as well.

San Diego Insulin Pumpers will never sell, rent, or share your email address!  Please add sdinsulinpumpers@gmail.com to your safe senders list to ensure you receive further communication.
____________________________________________________________
2016 Pump Club Programs

August 8     Matthew Schoenherr, Sharp Hospital Exercise Physiologist
Sept 12      Jo Ann Shartel CDE, RN, CPT
Oct 8        Dr. Steve Edelman and Dr. Jeremy Pettus
Nov 14       John Walsh, PA,CDE Current research, news from the ADA conference
Dec 12       HOLIDAY DINNER

Other Diabetes Events

7/11     6-7:30  Scripps Whittier Institute Type 1 Diabetes Connect.  Email Ohrmund.Cheryl@scrippshealth.org for more information.

7/14    7:00-9:00  The North County Diabetes Support Group meets at Tri City Medical Center, 4002 Vista Way, Oceanside, CA 92056 on the 2nd Thursday of the month. (Use the main entrance, take the elevator down to the lower level, then follow the signs!)  Call 760-576-5158 or email NorthCountyDiabetesGroup@gmail.com for more information

7/20     6:30-8:30 TCOYD Miniseries - Type 1 Night

9/6      6-7:30  Scripps Whittier Institute Type 1 Diabetes Connect.  Email Ohrmund.Cheryl@scrippshealth.org for more information.

10/1     10-4  TCOYD Conference

11/1     6-7:30  Scripps Whittier Institute Type 1 Diabetes Connect.   mail Ohrmund.Cheryl@scrippshealth.org for more information.

11/16    6:30-8:30 TCOYD Miniseries - Cooking That Caters to Your Health
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Tuesday, June 7, 2016

June Meeting 2016

GREAT NEWS:  THE  SD Insulin Pumpers WEBSITE IS ONLINE!!!  FOR NOW, TO ACCESS THE SITE, YOU MUST TYPE OUR FULL SITE URL (sdinsulinpumpers.blogspot.com) IN THE ADDRESS BOX AT THE TOP OF THE SCREEN.  WE SUGGEST YOU BOOKMARK THE SITE TO MAKE IT EASIER TO ACCESS.

Don't Miss the JUNE meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: Open Discussion.  Bring your issues or questions,  With over 200 years of experience living with diabetes in the group, one  of our members has had similar issues and can share their experience with you.

LAST MONTH: Last Month: C.C. King, research scientist and Christine, Executive Director from Diabetes Research Connection (DRC) (http://sdinsulinpumpers.us3.list-manage.com/track/click?u=10bf3478ca168b1633b80832c&id=7f410a5722&e=c9f09e870a) spoke to us. DRC was formed as a nonprofit organization in 2012 to fund diabetes research by young research scientists that wouldn’t receive funding through tradition sources. The goal of DRC is to provide (through crowd funding) $50,000.00 grants to researchers.

The submission process with DRC is about 12 weeks, considerably shorter than the traditional grant process which can take 12-15 months. Once the research proposal is accepted through DRC’s peer review process it is posted on the DRC website.  From there, the public can select a research study to fund.  DRC has funded 6 studies so far with 4 studies currently on the website looking for funding.

One of the unique features of making a donation to a DRC research project is you will be kept informed of the study’s progress through the website. One of the studies funded through DRC is a hospital study that will examine the value and utility of the CGM in the inpatient environment. We  have asked DRC to return in 2017 to report on the CGM hospital study. Please check out the Diabetes Research Connection website for the latest in Diabetes research.

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.

Tuesday, May 3, 2016

May Meeting 2016

GREAT NEWS:  THE  SD Insulin Pumpers WEBSITE IS ONLINE!!!  FOR NOW, TO ACCESS THE SITE, YOU MUST TYPE OUR FULL SITE URL (sdinsulinpumpers.blogspot.com) IN THE ADDRESS BOX AT THE TOP OF THE SCREEN.  WE SUGGEST YOU BOOKMARK THE SITE TO MAKE IT EASIER TO ACCESS.  THANK YOU AGAIN to Rick Miles who spent many hours getting it online.  Additional updates are planned.

Don't Miss the MAY meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: Charles "C.C." King, is going to speak about some of the exciting new diabetes research being funded by DRC. DRC's mission is to connect donors with early-career scientists enabling them to perform peer-reviewed, novel research designed to prevent and cure type 1 diabetes, minimize its complications and improve the quality of life for those living with the disease.

LAST MONTH:  Two representatives from United Healthcare spoke on how to select the Medicare coverage that will pay for Pump and CGM supplies. Several important requirements for a smooth transition to coverage for supplies were outlined. Before joining Medicare, make an appointment to see your doctor and request lab work for a Fasting Blood Sugar test and a C Peptide test. Medicare requires a blood test with BG’s under 225 and a C Peptide test before they will reimburse pump supplies. They require proof of Type 1 Diabetes, even if we have had the disease for over 50 years.

Reimbursement of our CGM supplies is a little trickier requiring homework on our part.  We must determine and select the Medicare plans that cover CGM supplies. Developing a relationship with an Insurance Agent with the insurance company you select is the best way to get the correct answers about which or if their plans cover CGM devices. The Agents are better trained about plans than a customer service rep through an 800 number.

Agents will be able to help you select an appropriate insurance plan if you have a list of your medical priorities, along with prescription, medical device and doctor requirements when you call. Plans that are most likely to cover CGM products are Medicare HMO plans with Part C coverage.  Many of these plans cover CGM products under the Prescription benefit, not the Durable Medical benefit as with traditional health insurance plans.  Most traditional Medicare A, B, and D plans with a Medigap supplemental plan generally do not cover CGM products. CMS.gov is a good source of information on Medicare.

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.

Tuesday, April 5, 2016

April Meeting 2016

Don't Miss the APRIL meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: Selecting Medicare Plans that cover Devices and/or Supplies
MEETING TIME: Monday, April 11th, 7:00-8:30pm
LOCATION: Sharp Medical Facility 8695 Spectrum Centre Blvd, Room 186

THIS MONTH: Two representatives from United Healthcare will speak to us on how to select the correct Medicare insurance that will cover our Pump and CGM devices and supplies. This is an important meeting for anyone on Medicare or close to signing up for Medicare.

LAST MONTH: We had an amazing meeting facilitated by Veronica Lode RD, LDN, CDE with Tandem Pumps. Veronica assembled a panel of 4 Type 1’s that regularly participate in intense exercise. The main message was any activity lasting over 1 hour requires refueling to replenish the body and your blood sugar.

Some of the most popular snack items for refueling are granola/energy bars, peanut butter and crackers, fruit and veggie puree in pouches (check the baby food isle), Honey Stingers (a gummy bear with a honey center), chocolate milk, glucose tablets and Snickers bars.

Try to have all bolus insulin out of your system before starting intense exercise to help prevent lows. To prevent night time lows after intense exercise, consider lowering your basil rate and eat protein in your bedtime snack. Another suggestion was to use a long-acting insulin such as Lantus to inject for part of the basil rate. Long-acting insulins are less volatile than short-acting insulins and work better with intense activity. Another reason for using a long-acting insulin with intense physical activity is if your infusion set gets pulled out or goes bad, you have the long-acting insulin on board to lower the risk of ketoacidosis.

^^^^^PLEASE CHECK THE SIDEBAR LINKS TO LEARN ABOUT FUTURE PROGRAMS, STUDIES, AND OTHER DIABETES INFORMATION OF INTEREST.^^^^^

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.                                                                                                                                                 

Monday, March 7, 2016

March Meeting 2016

Don't Miss the MARCH meeting of the San Diego Insulin Pumpers!!!

THIS MONTH:  Managing Diabetes While Exercising
MEETING TIME:  ***MONDAY, MARCH 14th***, 7:00-8:30pm
LOCATION:  Sharp Medical Facility
8695 Spectrum Centre Blvd, Room 186

THIS MONTH: Veronica Lode, Tandem Pumps, moderates an informative panel discussion around managing diabetes during physical activity/exercise.

LAST MONTH: We had an open discussion with 13 pumpers. We went around the table, introducing ourselves and an issue/question we wanted help with.  Use of the Dexcom Clarity app was clarified. Adhesion issues and solutions to try: Skin Tac, Tegaderm, Flexifit, Hypafix or TK tape.  The increase in drug cost especially insulin was brought up and it was suggested to shop around (Costco) and check out mail order sources.

^^^^^PLEASE CHECK THE SIDEBAR LINKS TO LEARN ABOUT FUTURE PROGRAMS, STUDIES, AND OTHER DIABETES INFORMATION OF INTEREST.^^^^^

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.


Monday, February 1, 2016

February Meeting 2016

Don't Miss the FEBRUARY meeting of the San Diego Insulin Pumpers!!!

THIS MONTH: OPEN DISCUSSION
MEETING TIME:  Monday, February 8th, 7:00-8:30pm
LOCATION:  Sharp Medical Facility
8695 Spectrum Centre Blvd, Room 186

THIS MONTH: We have an OPEN DISCUSSION.  That means you set the agenda.  Bring questions or tidbits from which we can benefit.

LAST MONTH: Laura Nunes, DexCom Territory Business manager spoke about the features and differences of the G4 and G5 CGM sensors. The G4 Share offers the ability to share BG data from the receiver via the cloud. The information can be accessed by up to 5 followers. The G5 transmitter shares directly with IPhones eliminating the need to carry a receiver.

Linda also clarified a Medicare insurance question regarding coverage of DexCom products. Medicare Supplemental insurance follows Medicare guidelines and usually does not cover CGM devices. However Secondary insurance may cover your CGM.  Also you may find your insurance will offer coverage through your pharmacy benefit.

^^^^^PLEASE CHECK THE SIDEBAR LINKS TO LEARN ABOUT FUTURE PROGRAMS, STUDIES, AND OTHER DIABETES INFORMATION OF INTEREST.^^^^^

Pre-Meeting Dinner (Souplantation): Several of us get together about 5:30 before each meeting for dinner, and all are welcome!  Anyone who would like a bite of dinner before the meeting can join us this month at the Souplantation Restaurant in Kearny Mesa, 7095 Clairemont Mesa Boulevard (just east of 805), 858-715-6824.  Please be ready to leave the restaurant by 6:45 and proceed to Sharp so that our speakers and non-dining members are not delayed.

As always, significant others and any friends and family supporters are always welcome at the meeting.  Our meetings are held the 2nd Monday of every month.